Lecture on December 4th, 2019
The Value of Data in Healthcare: Beyond Nudging
Barbara Prainsack (University of Vienna)
About the lecture
Datafication, digitisation and automation in healthcare and medicine create new opportunities for the use of patient data, ranging from digital epidemiology to “nudging” patients to adopt healthier lifestyles. This takes place in a political economy that is characterised by profound power asymmetries between data subjects and corporate data users. Despite these asymmetries, important political questions - such as who benefits from data use, and how - receive relatively little attention in policy and public debates. Part of the reason for this is that current data governance frameworks and policies do not differentiate between data uses that serve corporate v. public interests. In my talk, I will propose ways to make questions about the public value of data use more explicit. I will also unpack the frequent assumption that the use of patient data for nudging is beneficial. I will argue that we should use patient data to help build better institutions, and address social determinants of health, instead of focusing on tackling individual behaviour.
About the speaker
Barbara Prainsack is a Professor at the Department of Political Science at the University of Vienna, and at the Department of Global Health & Social Medicine at King’s College London. Her work explores the social, regulatory and ethical dimensions of biomedicine and bioscience, with a focus on personalised and “precision” medicine, citizen participation, and the role of solidarity in medicine and healthcare (most recent book: Personalized Medicine: Empowered Patients in the 21st Century?, NYU Press, 2017). Barbara is a member of the Austrian National Bioethics Committee and of the European Group on Ethics in Science and New Technologies advising the European Commission.
photo credit: private
Wednesday, 4. December 2019, 18:15-19:45
Main Campus, West Wing, Room W221
Edmund-Siemers-Allee 1
20146 Hamburg
poster lecture Barbara Prainsack [pdf]
programme "Taming the Machines" [pdf] in winter 2019/20
site plans:
lecture halls at Edmund-Siemers Allee 1: ESA1 [pdf]
University of Hamburg (Edmund-Siemers-Allee 1 is number 12 in C3 of the map): UHH [pdf]